I woke up yesterday and had a sudden realization that I was not in pain. I felt good! That never*fucking*happens!!! For reals! My body wasn’t humming… no PGAD undercurrent of buzz… no joint pain… no pelvic tightness or pain radiating down to my toes…I wasn’t bone tired, I was up!
I wish I could tell you I live for these days and rejoice that there is no pain but these days aren’t happy for me. They are a sparse reminder of what I SHOULD FEEL! I should feel okay, damn it. Of course, I should pay if I over do something or strain a muscle. Bust I shouldn’t feel this way for nothing. I think my greatest anger comes from the fact that I know, with out a doubt, I can’t replicate it. I can’t repeat it because I know that I haven’t done anything differently to get these results. I didn’t do/eat/smoke/topical/infused/physical therapy anything or way differently to feel SO amazing.
So, I can’t ever replicate that feeling. Believe me, I’ve tried and tried and tried. So then, add insult to that with the fact that I know damn well my body is perfectly capable of feeling normal all by itself but here I am, constantly digging deep in a toolbox to find some combination of past pain relief triggers to combat today’s pain… it’s ridiculous that I have to fight this hard to feel normal. I say normal only because that’s what my normal would feel like… a neutral zone for all pieces of my body, where all systems are at peace at the same time. It’s hard to continue to care for a body that has betrayed you.
I hope this explains why good days aren’t celebrated like one would expect. I believe a lot of patients experience similar feelings to what I am expressing. Not to say I won’t take full advantage of a good day, just pointing out how sometimes they remind me how bad the pain really is!
Good day’s are scary for me in the fact that I’m scared to death to do even do one little thing…sneeze, cough, move a muzcle because if I do I’ll be right back to my reality.
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I know! It’s nice to see others feel the same. Thank you.
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